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Published papers related to studies and one-time surveys

Final study results are published in scientific peer-reviewed journals. Study investigators may also wish to update participants on a regular basis and publish interim data. Results of some one-time surveys are also published.

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1997
Protocol for the investigation of acute flaccid paralysis and suspected paralytic poliomyelitis

Bentsi-Enchill A. Paediatr Child Health 1997;2(6):409-12

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1998
Following up on unfinished business – prenatal rubella screening and postpartum vaccination

Tam TWS. Editorial, CMAJ 1998;159:1117-8

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1998
Approach to the bleeding newborn

McMillan DD, Wu J. Paediatr Child Health 1998;3(6):399-401

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2001
Epinephrine dispensing for the out-of-hospital treatment of anaphylaxis in infants and children: A population-based study

Simons FER, Peterson S, Black CD. Ann Allergy Asthma Immunol 2001;86:622-6.

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2001
Epinephrine for outpatient treatment of anaphylaxis (EFOTA): A population-based study

Black CD, Peterson S, Simons FER. J Allergy Clin Immunol 2001;107(2):202

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2001
Flesh-eating disease: A note on necrotizing fasciitis

Davies HD. Paediatr Child Health 2001;6(5):243-7

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2001
Identification of neonatal liver failure and perinatal hemochromatosis in Canada

Jackson R, Roberts EA. Paediatr Child Health 2001;6(5):248-50

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2002
Real-time reporting of anaphylaxis in infants, children and adolescents by physicians involved in the Canadian Paediatric Surveillance Program

Simons FER, Chad ZH, Gold M. J Allergy Clin Immunol 2002;109:S181

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2004
Neonatal herpes simplex virus infections in Canada

Kropp RY, Wong T, Burton S, Embree J, Steben M. Int J STD AIDS: Clin Pract Sex Health 2004;15(S1):2

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2004
Surveillance for progressive intellectual and neurological deterioration in the Canadian paediatric population

Keene DL, Sutcliffe T, Harman P, Grenier D. Can J Neurol Sci 2004;31(2):220-4

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2004
Incidence of Smith-Lemli-Opitz syndrome in Canada: Results of three-year population surveillance

Nowaczyk MJM, Waye JS, Zeesman S, Douketis JD. J Pediatr 2004;145(4):530-5

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2004
Canadian Paediatric Surveillance Program confirms low incidence of haemorrhagic disease of the newborn in Canada
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McMillan DD, Grenier D, Medaglia A. Paediatr Child Health 2004;9(4):235-8

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2005
Population-based study of incidence and risk factors for cerebral edema in paediatric diabetic ketoacidosis

Lawrence SE, Cummings EA, Gaboury I, Daneman D. J Pediatr 2005;146:688-92

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2005
An epidemiological analysis of CHARGE syndrome: Preliminary results from a Canadian study

Issekutz KA, Graham JM, Prasad C, Smith IM, Blake KD. Am J Med Gen 2005;133A:309-17

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2005
Behavioral profile and symptoms of autism in CHARGE syndrome: Preliminary Canadian epidemiological data.

Smith IM, Nichols SL, Issekutz KA, Blake KD. Am J Med Gen 2005;133A:248-56

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2005
Prospective surveillance of Canadian children with the haemolytic uraemic syndrome

Proulx F, Sockett P. Pediatr Nephrol 2005;20:786-90

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2005
Subacute sclerosing panencephalitis: Results of the Canadian Paediatric Surveillance Program and review of the literature

Campbell C, Levin S, Humphreys P, Walop W, Brannan R. BMC Pediatrics 2005;5:47

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2006
Incidence and causes of severe neonatal hyperbilirubinemia in Canada

Sgro M, Campbell D, Shah V. CMAJ 2006; 175(6): 587-90

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2006
Neonatal herpes simplex virus infection in Canada: Results of a three-year national prospective study

Kropp RY, Wong T, Cormier L, Ringrose A, Burton S, Embree JE, Steben M. Pediatrics 2006;117:1955-62

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2007
AFP surveillance in Canada

Macey J, Lipskie T. Pan American Health Organization Immunization Newsletter, Apr 2007;XXIX(2):1-3

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2007
Epidemiology and outcome of necrotizing fasciitis in children: An active surveillance study of the Canadian Paediatric Surveillance Program
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Ihuoma E, Davies HD. J Pediatr 2007; 151(7): 79-84

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2007
Vitamin D-deficiency rickets among children in Canada
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Ward LM, Gaboury I, Ladhani M, Zlotkin S. CMAJ 2007;177(7):161-6

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2007
Prevention of congenital rubella syndrome

Infectious Diseases and Immunization Committee, Canadian Paediatric Society. Paediatr Child Health 2007; 12(9): 795-77

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2008
The Canadian Paediatric Surveillance Program: A framework for the timely data collection on head injury secondary to child maltreatment

Bennett S, Grenier D, Medaglia A. Am J Prev Med 2008; 34(4S): S140-2

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2008
The spectrum of seat belt syndrome among Canadian children: Results of a two-year population surveillance
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Santschi M, Lemoine C, Cyr C. Paediatr Child Health 2008; 13(4): 279-83

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2008
Prevention of kernicterus – New guidelines and the critical role of family physicians

Shaw E, Grenier D. FP Watch, Can Fam Physician 2008; 54(4): 575-6

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2009
Incidence of acquired demyelination of the CNS in Canadian children

Banwell B, Kennedy J, Sadovnick D, Arnold DL, Magalhaes S, et al. Neurology 2009;72:232-9

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2009
Adverse events associated with paediatric use of complementary and alternative medicine: Results of a Canadian Paediatric Surveillance Program survey
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Vohra S, Brulotte J, Le C, Charrois T, Laeeque H. Paediatr Child Health 2009; 14(6): 385-7

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2009
Patient registries and trial readiness in myotonic dystrophy: TREAT-NMD/Marigold International Workshop Report.

Campbell C. Additional outcome measures for childhood and congenital DM1. Thompson R, Schoser B, Blonsky K, Lochmuller H. Neuromuscul Disord 2009; 19: 860-6

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2010
Congenital myotonic dystrophy in a national registry
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Prendergast P, Magalhaes S, Campbell C. Paediatr Child Health 2010; 15(8): 514-8 

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2010
Type 2 diabetes, medication-induced diabetes, and monogenic diabetes in Canadian children: A prospective national surveillance study

Amed S, Dean HJ, Panagiotopoulos C, Sellers EAC, Hadjiyanakis S, Laubscher TA, Dannenbaum D, Shah BR, Booth GL, Hamilton JK. Diabetes Care 2010; 33(4): 786-91

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2010
Acute neurological findings in a national cohort of neonates with severe neonatal hyperbilirubinemia

Sgro M, Campbell D, Barozzino T, Shah V. J Perinatol 2011; 31(6): 392-6. Epub 2010 Dec 9; doi:10.1038/jp.2010.137

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2011
Rubella elimination: The Canadian experience

Macey JF, Tam T, Lipskie T, Tipples G, EisBrenner T. J Infect Dis 2011; 204: S585-92

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2011
Incidence and age-specific presentation of restrictive eating disorders in children – A Canadian Paediatric Surveillance Program study

Pinhas L, Morris A, Crosby RD, Katzman DK. Arch Pediatr Adolesc Med 2011; 165(10): 895-9. doi:10.1001/archpediatrics.2011.145

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2011
Does active surveillance of serious and life-threatening adverse drug reactions improve reporting?
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Paediatr Child Health 2011;16(9):532-4

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2011
Head injury secondary to suspected child maltreatment: Results of a Canadian national surveillance program

Bennett S, Ward M, Moreau K, Fortin G, King J, MacKay M, Plint A. Child Abuse Negl 2011; 35(11): 930-6

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2011
Risk factors for medication-induced diabetes and type 2 diabetes

Amed S, Dean H, Sellers EA, Panagiotopoulos C, Shah BR, Booth GL, Laubscher TA, Dannenbaum D, Hadjiyannakis S, Hamilton JK. J Pediatr 2011; 159(2): 291-6

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2012
Incidence of chronic bilirubin encephalopathy in Canada, 2007-2008

Sgro M, Campbell DM, Kandasamy S, Shah V. Pediatrics 2012;130(4):e886–90. doi:10.1542/peds.2012-0253
 

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2012
Incidence of medium-chain acyl-CoA dehydrogenase deficiency in Canada using the Canadian Paediatric Surveillance Program: Role of newborn screening
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Prasad C, Speechly KN, Dyak S, Rupar CA, Chakraborty P, Kronick JB. Paediatr Child Health 2012;17(4):185-9

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2012
Differing clinical features in Aboriginal vs. non-Aboriginal children presenting with type 2 diabetes

Amed S, Hamilton JK, Sellers EAC, Panagiotopoulos C, Hadjiyannakis S, Shah BR, Booth GL, Laubscher TA, Dannenbaum D, Dean H. Pediatr Diabetes 2012;13(6):470-5. doi: 10.1111/j.1399-5448.2012.00859.x

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2012
Transfusion-related acute lung injury in the Canadian paediatric population

Gauvin F, Robillard P, Hume H, Grenier D, Whyte RK, Webert KE, Fergusson D, Lau W, Froese N, Delage G. Paediatr Child Health 2012;17(5):235-9

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2013
Canadian allergists' and nonallergists' perception of epinephrine use and vaccination of persons with egg allergy

Desjardins M, Clarke A, Alizadehfar R, Grenier D, Eisman H, Carr S, Vander Leek TK, Teperman L, Higgins N, Joseph L, Shand G, Ben-Shoshan M. J Allergy Clin Immunol: In Practice 2013;1(3):289-94. http://www.medicine.mcgill.ca/epidemiology/joseph/publications/Medical/Desjardins2013.pdf

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2013
Congenital myotonic dystrophy: Canadian population-based surveillance study

Campbell C, Levin S, Siu VM, Venance S, Jacob P. J Pediatr 2013 Jul;163(1):120-5
http://download.journals.elsevierhealth.com/pdfs/journals/0022-3476/PIIS0022347612015594.pdf

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2013
Severe combined immunodeficiency (SCID) in Canadian children: A national surveillance study

Rozmus J, Junker A, Thibodeau ML, Grenier D, Turvey SE, Yacoub W, Embree J, Haddad E, Langley JM, Ramsingh RM, Singh V-A, Long R, Schultz KR. J Clin Immunol 2013;33:1310-6

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2013
Clinical characteristics of paediatric myasthenia: A surveillance study

VanderPluym J, Vajsar J, Jacob FD, Mah JK, Grenier D, Kolski H. Pediatrics 2013;132(4):e939-44

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2013
Clinical characteristics of pediatric patients hospitalized with methicillin-resistant Staphylococcus aureus in Canadian hospitals from 2008 to 2010
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Leifso KR, Gravel D, Mounchili A, Kaldas S, Le Saux N. Can J Infect Dis Med Microbiol 2013;24(3):e53-6

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2014
Congenital cytomegalovirus infection in Canada: Active surveillance for cases diagnosed by paediatricians
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Vaudry W, Lee BE, Rosychuk RJ. Paediatr Child Health 2014;19(1):e1-5

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2014
Concussion management by paediatricians: A national survey of Canadian paediatricians

Gordon KE, Do MT, Thompson W, McFaull S. Brain Inj 2014;28(3):311–7

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2014
Canadian paediatricians’ approaches to managing patients with adverse events following immunization: The role of the Special Immunization Clinic network
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Top KA, Zafack J, De Serres G, Halperin SA. Paediatr Child Health 2014;19(6):310-4

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2014
Serious adverse events associated with pediatric complementary and alternative medicine
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Zorzela L, Boon H, Mior S, Yager J, Gross A, Vohra S. Eur J Integr Med 2014;6(4):467-72